Topic: Deadly decline of my dad from this disease
I write this whilst preparing for my fathers funeral tomorrow. Please don't continue to read unless you are ready to read details of this disgusting disease cholongiocarcinoma.
He died on Wednesday night (13th) at home in pain fighting for breath. It has been such a horrible 90 days from mild stomach pains/ yellow skin tinge to death in the most undignified heartbreaking way in the blink of an eye. I really can't come to terms with how quickly he deteriorated.
My dad was 6ft 2" with a heavy build 4 months ago before we discovered this silent killer was growing inside him. He was laid in the chapel of rest this afternoon a withered shell of his former greatness. My poor dad.
After being admitted to local hospital my dad was transferred to a Centre of excellence where the family were told we were dealing with something pretty nasty. We had absolutely no idea how nasty!! He went on to have 2 stents fitted which reduced the jaundice but ruined the remainder of his life. He never ate solid food again and picked up 3 life threatening infections the week he was released. He was then re admitted into hospital for IV antibiotics where he spent the next 6 weeks. At the end of week 6 the consultant team came in to tell us that there was no longer any point in treating my dad.
My dad was released home with a hospital bed and a portable toilet and died 48 hrs later. He couldn't even get out of his bed to use the toilet alone.
He was fighting for breath and begging for help during the final hours before his death. I will struggle to ever get this out of my mind.
Following the death of my dad the family are utterly numb, trying to attend to the formalities, but can't accept how little treatment is available for this disease. Once symptoms present. Thank The Lord for the people who create websites such as this trying to make a difference and support sufferers and their families through utter hell. I contacted Marion the night my dad was diagnosed, she offered me the most amazing support when I didn't know where to turn. Thanks Marion for your compassion as well as your optimism.