Re: Update on NIH Trial

Oh Kim....thank you so much for the kind words, I just want to help in anyway I possibly can! You and your dad are so inspiring to me! I love the way you fight with all you have for your mom! I hope that with the sequencing she had done it will open more doors! Please keep us updated with her progress. I will continue to pray for her....please give a hug to your dad for me, I so enjoyed my conversations with him! I could feel the love he has for your mom.....so special!
Love and prayers to you!
Melinda

Re: Update on NIH Trial

Melinda, thanks so much for your kind words and concern. We are making progress. We have an appointment at NIH on August 4th for screening. I now have my foot in the door. And, there is a clinical trial at Johns Hopkins that is also treating Jeanne's specific mutation. So, we are making progress. Thanks for all your love and prayers. You're the best.
Richard

Re: Update on NIH Trial

That is awesome news Richard!!!! I am looking forward to hearing back what you find out, progress is all we can ask for....one foot in front of the other! Keep up the good work and tell Jeanne to hang in there! Lots of prayers coming your way!!
Melinda

Re: Update on NIH Trial

A bit more information regarding the clinical trial:
http://www.nih.gov/researchmatters/may2 … cancer.htm

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Update on NIH Trial

Thanks for that Marion.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Update on NIH Trial

And, yes the person described is our very own Melinda.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER