Re: Survival...Please tell us your latest milestone

My mom has a scan today at Sloan and happy to report CLEAN!!!! Resection was done 8/5/2013 and chemo completed 3/2014. Dr.Chapman at Barnes did the resection!!

Re: Survival...Please tell us your latest milestone

Daisy, WONDERFUL and AWESOME! YIPPEE!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Survival...Please tell us your latest milestone

Brilliant news Daisy, well chuffed for you and your mum!!! Love hearing news like this!!!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Survival...Please tell us your latest milestone

Big hugs to you and your mom....dancing a happy dance for you.  Best news to get!!!

"Just for today, I can get through anything."  Hey....I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences or knowledge.  As always, talk to your doctor about your concerns and treatment.

Re: Survival...Please tell us your latest milestone

Love this news and your family!!!!
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Survival...Please tell us your latest milestone

My husband was diagnosed 7/1/13 with Stage 3  cholangiocarcinoma of right lobe of the liver and right bile duct and right common bile duct.  It is inoperable because of its size (5x5x6cm).
Charlie has now been off chemo since 7/25/14 after being on it for a year, having Cisplatin and Gemcitabine one week,  then Gemcitabine the next week and off one week.
He had a CT scan on 11/20/14 so they could see how the tumor is doing. We found out it has not grown at all, very good for being off chemo so long. It has never shrunk at all from the chemo.  So his oncologist is keeping him off for another 8 weeks.  His latest test for the cancer ag (Antigen) 19-9 testing tumor markers, which was done 12/29/14 shows his level at 312. When he was still on chemo, it got down (from 2806 in June 2013 to 88 on 9/18/14, then up to 145 on 10/28/14. So it hasn't gone up a whole lot for being off chemo so long. The doctor said all his tests look pretty good. The CT scan did show some enlargement of the liver and spleen but upon physical exam, he could not feel it enlarged so it must not be that bad. His doctor told him that 85% of those with his cancer die within 1 year and the rest don't make it past 2 years. He is now at 1.5 years and his doctor said he just MAY be on of the rare one who beats the odds and could last another couple years! Keep praying that's the case.
He is gaining weight slowly, now up to 155.  He feels good and has energy to do things so right now all is good.

Re: Survival...Please tell us your latest milestone

Ladi Di.....thanks for checking in again and for sharing this excellent news with us.  Amazing that your husband is doing so well albeit the lack of chemotherapy.  Wishing for all good things to continue.  Please don' forget about us.  We love to stay involved.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Survival...Please tell us your latest milestone

LadyDi -

Your husband and I are pretty much on the same time track.  I am still receiving chemo, when platelets permit.  I recovered my weight much faster (probably due to more chocolate cake).

I wouldn't worry too much about the survival stats, if you look hard enough you can find pretty much any number you want (or don't want).

And, as many have said, there is no expiration date stamped on our heels.  So, stay on the merry-go-round and keep grabbing for the brass ring (Knoebels in Pa still has one of those).  Much better visual than the roller coaster.

Duke

Fighting with dignity, not desperation.
Live, Laugh, Love - One Day at a Time.
The past has passed.   "Second star to the right and straight on 'til morning."  JM Barrie

Re: Survival...Please tell us your latest milestone

Hi. Just curious if you got a second opinion and where you're being treated. Do you have a multidisciplinary team that are considering treatments other than chemo?  It sounds like chemo is working well but always good to have plan B lined up.

Re: Survival...Please tell us your latest milestone

He is being treated at the VA Hospital in Minneapolis, MN for his metal stent work and the VA Hospital in St. Cloud, MN where his oncologist is.

Re: Survival...Please tell us your latest milestone

Just want to post an update.  Just had my 4 1/2 year scan..longest I have gone without a scan..6 months.  Clear, CA-19-9 at 19.5.  Have another scan at 5 years and if clear, I can go to yearly scans.  And yes, I, too, STILL look through the Good News section to stay positive!  I never thought I'd get to this point.  As with others, many good things have happened through these years and one of the best will happen at the end of February..another grandchild..number 4 for our Irish clan!
Thanks everyone for posting their good news.  I love it and I hope you will continue to post.
xKathy

Re: Survival...Please tell us your latest milestone

Kathy, you go girl and a big YIPPEE to you! Thank you for posting this as you give so many others the hope they need. We have been together quite a while now and I hope all your future posts are as good as this one is. YIPPEE!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Survival...Please tell us your latest milestone

Thanks for that Kathy, brilliant news!!!  Love it!! And of course, looking forward to hearing more good news from you after your 5 year scan as well!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.