I am very happy to report that I have just returned from my checkup at NIH. I am 16 months post treatment and have great results. The tumors continue to be stable, slight shrinkage in a few and they said one tumor in my lung seems to have completely disappeared!
This trial has been opened up to many solid cancers now, which is wonderful, but it also means that accrual has slowed down, because the demand is high. The wait time is longer from time of acceptance to actual cell infusion, which for many of us is not a good thing since time is always of the essence. They are continuing to learn more and more about immunotherapy and we need to keep our eyes open for some new trials on the horizon in about 6 months. I have such hope in the future of immunotherapy and wish it would only come sooner!!
While I am forever grateful for the amazing results I have been given, it is also bittersweet.... I have met and come to know so many wonderful people who I want so desperately to be able to share in this success. I pray everyday for everyone who fights this disease, for the researchers to find the cure and the strength and peace to overcome the difficulties. I love to hear other stories of success and hope, and I love to share them with others. I only want to inspire others to never lose hope. Three years ago, I would have never imagined being here.....five years ago when I was diagnosed, I had NO idea what I was in for.....things change, opportunities arise and miracles happen every single day!
I consider every single one of you part of my family, and I feel very privileged to be a part of this amazing family!!
Love and hugs,