Topic: Confusing, mixed messages
My brother finally convinced my dad that we needed to call hospice care, so he agreed. That was a big step. He wants to remain at home, so we have a whole team coming by to meet and assess him.
The social worker and chaplain talked with him, then told us he is not near death, that he's still very much in control and has a lot of fight in him (we could have told them that!) But then the nurse came, and when we asked her how to get him to eat more, she said he doesn't need food, and that the only reason for him to eat is if it gives him pleasure. If he's refusing it, don't push him. I understand that from their perspective, and when he's nauseated, but doesn't he need just a little something to help the medications be more effective? And won't he just die more quickly without any type of nourishment? We are putting pedialyte in his water glass, per the nurse's suggestion.
He had a very strong day on Tuesday, and wanted to go over funeral plans. We even played his musical selections on the computer, to make sure they were correct.
He's going by ambulance to the hospital today to get drained for the first time, and we're hoping that relieves some of the pain and discomfort.
Have a great day, everyone. Summer is still here in the Midwest, although the light is changing and I can feel fall waiting in the wings.