Topic: Running out of time?
Hi everyone. First, I just want to say that I am thankful to find this website and to see that there is support out there for this type of cancer. My heart goes out to everyone who is dealing with this and it gives me comfort that my family is not alone.
My father (53 years old) was just recently diagnosed. He was hospitalized on 8-14-06 because of jaundice. After tons of tests and a liver biopsy, it was determined on 8-28-06 that he had cc. He has satge 4 cc with mets to the liver, lymph nodes and the omentum. His bilirubin level was 31 at the highest point and his CA19-9 level was at 12,000. We were told he had 2-3 months to live and pallative care would be the best option.
We sought a second opinion at The Mayo Clinic, where he is currently being treated. Our oncologist at the Mayo told us that chemo was an option but we had to wait until the jaundice cleared before chemo could be started. The prognosis is still poor though.
He has had 2 drainage tubes (1 at St. Johns, 1 at Mayo) put in to try to clear the jaundice but his bilirubin levels as of 9-16-06 are still at 10.1. They have found a blood clot in his lung and clots in his legs. He's currently hospitialized because of severe dehydration, extremely low blood pressure and ascites. They are still working on finding the cause of his low blood pressure but he is no longer dehydrated. He will be having the ascites drained tomorrow.
I am so afraid that he is close to liver failure and he will never get strong enough to start chemo. I don't want my father to have to go through chemo if it's going to make him feel worse and it's not going to help him but I don't want to start hospice care either because it feels like we are just giving up.
I really wish there was more research on this cancer and better screening so it could be caught in the earlier stages when it is still treatable.