Community Champion Q&A: Dava & John Bringing Hope Mile by Mile
Dava Schwentker became the first cholangiocarcinoma patient to run the TCS New York City Marathon for Team CCF. After a recurrence kept her from joining in 2023, she returned stronger in 2025, and this time ran alongside her husband, John. Together, they raised awareness and funds for this rare cancer.
We caught up with Dava and John to hear about their journey, their experience with CCF, and the lessons they want to share with other patients and caregivers.
Q: Can you tell us a little about yourselves?
Dava: I grew up in Evansville, Indiana, and now live in Greenwood, Indiana, with John. I worked as a registered nurse and started running in my early 30s. After my diagnosis, I took a break from running but stayed active with walking and light jogging.
John: I also grew up in Evansville and now live in Greenwood. Most of my career was with the YMCA, and I currently work in Development at the University of Indianapolis. I started running in 1996 and doing triathlons in 2006. I’ve done one other marathon—the Chicago Marathon in 2004—and jogged/walked the NYC Marathon with Dava.
Q: What inspired you to join Team CCF and run the NYC Marathon?
Dava: Running NYC had always been on my bucket list. After my diagnosis, I wanted to do it to raise awareness for cholangiocarcinoma and raise funds to support research for this rare cancer.
John: Initially, I wasn’t going to run. I was just helping with fundraising. But I wanted to support Dava, so I decided to run with her. I didn’t realize she would beat me so badly!
Q: How did you feel after completing the marathon?
Dava: Physically, it was exhausting, but accomplishing my goals made it completely worth it. Crossing that finish line was a reminder of all we can overcome.
John: I was really glad I did it, though it was tougher than I expected. I was inspired by the runners, volunteers, and the people of NYC cheering us on. It was truly humbling to see so much support all around.
Q: What has been your experience with CCF?
Dava: CCF has been amazing. I’ve attended online research and treatment seminars and the annual conference. The Foundation provides hope, educational resources, and patient mentorship. Everyone I’ve interacted with has been positive and knowledgeable.
John: I didn’t know much about CCF until we got involved in the marathon, but now I want to stay involved and help however I can to support the organization.
Q: What message would you like to share with other patients and caregivers?
Dava: Never give up and keep the faith. The prognosis may not always be good, but advancements in treatment have been amazing. Everyone copes differently—there’s no right way. It’s okay to feel fear, sadness, or anger, but keep moving forward and find support wherever you can.
John: Keep the faith! Caregivers, be patient and understanding. The mental aspect of cancer is huge. Support each other as much as possible, and never underestimate the power of prayer.
Q: What are your hopes for the future?
Dava: I hope cholangiocarcinoma receives more awareness and research funding—like breast, colon, and prostate cancers. I also hope to continue mentoring or supporting other patients through CCF.
John: We need more research for this type of cancer, and we all need to continue advocating.
Dava and John’s story is a testament to resilience, teamwork, and hope. Together, they’re running not just marathons but toward a future with better treatments, greater awareness, and brighter prospects for everyone affected by cholangiocarcinoma. Learn more about Team CCF here.
