• Webinar Request Form
• Submit a Clinical Trial

If you are interested in requesting a Patient Advisory Board for input on clinical trials, educational materials or other related topics, please contact Melinda Bachini for more information.

• International Cholangiocarcinoma Research Network (ICRN)
• Clinical Trials
• CCA Mutations
• CCA Cell Lines & PDX Models

The Cholangiocarcinoma Foundation (CCF) appreciates the ongoing commitment, engagement and support of our colleagues in industry who share our passion for addressing the unmet needs of cholangiocarcinoma patients. We are so grateful for the increasing level of interest in this disease among so many companies. In recognition of this robust therapy development environment, CCF is excited to announce our Industry Council (IC), whose purpose is to provide a collaborative forum for ongoing engagement and build stronger partnerships on areas of mutual interest.

Industry Council Benefits:

• Elevate your company’s profile within the CCA community.
• Provide input and recommendations on IC meeting topics and related projects.
• Engage in annual opportunities for the IC to customize a query of the CCF Patient Registry.
• Engage in annual opportunities for the IC to conduct one patient survey with CCF.
• Priority access to conducting one educational clinical trial webinar for patients.
• Opportunity to collaborate with allied companies working in the cholangiocarcinoma space to address community challenges and accomplish mutually beneficial goals and educational materials.
• Opportunity to participate in planning/promotions for global Cholangiocarcinoma Awareness Day/Month (including working with nonprofit CCA partners).
• Recognition of IC membership in CCF emails, press release(s), and online channels (including the CCF website).
• Priority booth selection at Annual Conference
• Premium time slots for Industry Forum and Patient Advisory Board
• Quarterly engagement with CCF leadership
• Learn more about the importance of advocacy

Here are a few projects we are undertaking:

• Covid-19 effects on our community
• Develop more patient education videos
• Growing Patient Registry Data through collaboration with Ciitizen
• Develop Standardized Informed Consent

Building on Past Successes:

• FDA meeting
  • Pharmaceutical and biomarker testing companies came together with the objective of streamlining the approval process of CCA therapy
• Increased number of clinical questions added to Patient Registry.

Join the Industry Council!

For more information, please contact Kaylin Allenbrand at [email protected]

• Our Grants
• Our Research Philosophy
• Our Advisory Boards

The upcoming Annual Conference is a unique opportunity for patients and caregivers to sit side-by-side with experts in the field and provide their voices in helping focus research priorities. This year’s Conference is an effort between CCF’s International Cholangiocarcinoma Research Network (ICRN) and the European Cooperation in Science and Technology (COST)-Action: Precision-BTC-Network, part of the European Network for the Study of Cholangiocarcinoma (ENS-CCA).

The initiative brings together patients, caregivers, advocates, oncologists, researchers, industry, young investigators, regulators, and other specialists worldwide to review scientific evidence, share insights, and reach a consensus, or full agreement, on the research focus going forward to optimize existing funding and attract new funding. Your voice matters, and we want your participation. In addition to the same excellent community interaction offered at the Conference, patients and caregivers can participate in breakout sessions will be provided even more opportunities to interact with experts in the field.