Executive Leadership at the Cholangiocarcinoma Foundation
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie’s brother, Mark Clements, was diagnosed in 2005 and ultimately passed away from Cholangiocarcinoma on January 19, 2007. Stacie advocated for her brother, extensively researched treatment options, and began networking with other patients, scientists, and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born.
Stacie is a founding member and has served on the Board of Directors since its inception. Stacie resides in Lehi, Utah, where she has five children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University and studied nonprofit leadership at Harvard Business School. Stacie is an active member of her church and community.
Melinda Bachini
Cholangiocarcinoma Foundation
CHIEF PATIENT OFFICER
BILLINGS, MONTANA
Melinda Bachini
Cholangiocarcinoma Foundation
CHIEF PATIENT OFFICER
BILLINGS, MONTANA
Melinda Bachini is a 16-year survivor of cholangiocarcinoma. She was treated at the National Cancer Institute with a clinical trial using Adoptive Cell Therapy.
Melinda is married and the mother of six children, grandmother to two, and two more on the way. She is passionate about patient advocacy and uses her experience with previous and current treatments to give great insight into patients participating in clinical trials. She shares her story with as many cancer patients as possible in hopes of giving support to those in need.
Melinda served as a patient advocate for the NCI Hepatobiliary Task Force, the NCI Patient Advocate Steering Committee (PASC) from April 2016 to December 2022. She is a patient advocate for the ECOG-ACRIN GI Committee, ECOG-ACRIN Cancer Research Advocacy Committee, the NCI Council of Research Advocates, and the NCCN Hepatobiliary Guidelines Panel.
Amanda Palumbo
Chief Development Officer
Red Hook, New York
Amanda Palumbo
Chief Development Officer
Red Hook, New York
Amanda joined CCF in 2024, bringing with her over 14 years of experience in fundraising and nonprofit management within major health nonprofits. Passionate about making a difference, Amanda has successfully led numerous campaigns that have raised millions for health-related causes, including science innovation, patient support, and community development.
With a knack for building strong relationships and fostering collaboration, Amanda is committed to engaging donors to inspire support. She hopes her experience working with philanthropists, corporate entities, and community fundraisers will translate into meaningful experiences for supporters and a significant impact on CCF’s mission.
Amanda lives in the Hudson Valley of New York with her husband and three young children. In her spare time, Amanda enjoys exploring new activities with her kids, cycling, and advocating for causes close to her heart. She holds a BA from the State University of New York at Binghamton and an MA from the University of South Florida Saint Petersburg. Amanda’s journey as a mom fuels her passion for creating a better world for future generations.
Juan Valle, MB, ChB, MSc, FRCP
Cholangiocarcinoma Foundation
CHIEF MEDICAL OFFICER
BOULDER, COLORADO
Juan Valle, MB, ChB, MSc, FRCP
Cholangiocarcinoma Foundation
CHIEF MEDICAL OFFICER
BOULDER, COLORADO
Dr. Valle most recently served as a professor and honorary consultant in medical oncology at the University of Manchester and The Christie NHS Foundation Trust in Manchester, UK. Dr. Valle was part of a team establishing the first standard of care for patients with advanced cholangiocarcinoma in 2009 and is a founding member of the International Biliary Tract Cancer Consortium. He chaired the UK National Cancer Research Institute neuroendocrine subgroup and was a member of the hepatobiliary and pancreatic cancer subgroups. His research focused on developing new therapies for pancreatic, biliary, and neuroendocrine cancers, and he has been instrumental in designing and developing many clinical trials.
Throughout his career, Dr. Valle has made significant contributions to the field, authored numerous publications, including over 300 scientific articles, and received multiple research grants to support his work. His research set the standard for patient care in cholangiocarcinoma.
Lily Zhang, MBA, CPA, CGMA
Chief Financial Officer
Carlton, Oregon
Lily Zhang, MBA, CPA, CGMA
Chief Financial Officer
Carlton, Oregon
Lily joined the Cholangiocarcinoma Foundation in 2024 as Chief Financial Officer with responsibilities for the Foundation’s financial management and long-range financial strategy. Prior to joining CCF, Lily spent three years in Washington with Empire Health Foundation as its Chief Financial Officer with responsibilities that included financial management, risk management, and impact investment strategy. Lily also spent eleven years in North Carolina with The Duke Endowment, supporting organizations in healthcare, childcare, higher education, and rural churches. Lily began her career in corporate finance and consulting with PricewaterhouseCoopers LLP. She holds an MBA degree from Duke University’s Fuqua School of Business. She and her family live in Oregon.
Team
Jennifer Ahrendt
Senior Executive Assistant to the Chief Executive Officer
Fort Mills, South Carolina
Jennifer Ahrendt
Senior Executive Assistant to the Chief Executive Officer
Fort Mills, South Carolina
Jennifer joined the CCF in 2025, bringing over 15 years of experience supporting C-suite executives within nonprofit organizations and Fortune 500 companies. In her role as Senior Executive Assistant to the CEO, Jennifer serves as a trusted partner, supporting the CEO’s executive priorities through proactive coordination, high-level administrative support, and effective communication across teams.
Driven by a deep personal connection to CCF’s work, Jennifer is passionate about advancing the organization’s impact. She lost her uncle to cholangiocarcinoma in 2018, an experience that continues to fuel her commitment to supporting patients, caregivers, and families. Jennifer is also grateful to share that she is a Stage II Breast cancer survivor, which further strengthens her dedication to CCF’s mission and the cancer community.
Jennifer resides in Fort Mill, South Carolina with her husband, their two young sons, and their beloved dog, Daisy. In her free time, she enjoys spending time with her family, reading, painting and exploring new activities together.
Kaylin Allenbrand
DIRECTOR OF CORPORATE PARTNERSHIPS
DENVER, COLORADO
Kaylin Allenbrand
DIRECTOR OF CORPORATE PARTNERSHIPS
DENVER, COLORADO
Kaylin is dedicated to delivering growth and expansion of programs, driving strategic industry partnerships, and propelling the mission of the Foundation.
With over a decade of experience in the healthcare sector, particularly within pharmaceuticals and medical devices, Kaylin has a deep passion for patient and clinical support, advocacy, and innovation. Her passion for problem-solving and entrepreneurial mindset have been instrumental in navigating the intricacies of the healthcare industry while identifying opportunities for growth and collaboration.
Kaylin graduated with a Bachelor’s degree in Business Administration from the University of Florida and resides in Denver, Colorado, with her husband and very spoiled dog, Rylee.
Rosie Bauer, PhD
Senior Research Program Manager
Chicago, Illinois
Rosie Bauer, PhD
Senior Research Program Manager
Chicago, Illinois
Rosie is a research scientist with a background in both rare and common genetic disorders. She holds a BA in Biology from Lawrence University and a PhD in Human Genetics from Northwestern University. She has worked across the spheres of academic research and patient advocacy, and is especially passionate about effective science communication that bridges the gap between scientists and patients.
Outside of her work, Rosie enjoys trying new crafty projects, cuddling with her cat Meli, and coaching high school swimming. She’s also a true Midwesterner who enjoys craft beer, cheese, and the Milwaukee Brewers.
Tiffany Brimer
Executive Assistant to the CMO
JACKSONVILLE, FLORIDA
Tiffany Brimer
Executive Assistant to the CMO
JACKSONVILLE, FLORIDA
Tiffany is a seasoned executive assistant deeply rooted in the healthcare sector, skilled in managing complex schedules and refining administrative operations with a steadfast commitment to enhancing patient experiences. Motivated by her mother’s brave fight against HER2 breast cancer, she embodies empathy and resilience in every endeavor. Tiffany holds a Bachelor’s degree in Health Service Administration and lives in Jacksonville, Florida, with her son and two cats, Billy and Simba. Outside of her professional realm, she cherishes engaging in themed book clubs, exploring new travel destinations, and delighting in thought-provoking podcasts and culinary adventures.
Kaitlin Chamberlain, MPH
Community Fundraising Director
Mill Valley, California
Kaitlin Chamberlain, MPH
Community Fundraising Director
Mill Valley, California
Kaitlin joined CCF in 2025 with almost a decade of experience in both the public and private sectors, collaborating closely with stakeholders, businesses, and community members to create strategies and solutions that drive positive impact. At CCF, she partners with passionate supporters of CCF’s mission and oversees community fundraising efforts, which help the organization expand critical initiatives and continue to provide resources for patients, caregivers, and the medical community. Kaitlin has a strategic and goal-oriented mindset, a passion for health and improving quality of life, and a positive and empathetic personality, which she hopes will be a guiding force for CCF’s community fundraisers.
Kaitlin graduated from the University of Florida with a BS in Psychology and from the University of South Florida with a Master of Public Health (MPH) degree. She currently resides in San Francisco, California. Kaitlin enjoys trail running, biking, surfing, sailing, yoga, cooking, and reading. In her free time, she can be found outside exploring the Bay Area with her husband, two young children, and dog.
Amy Chart, LMSW
SENIOR DIRECTOR OF OPERATIONS
Madison, Wisconsin
Amy Chart, LMSW
SENIOR DIRECTOR OF OPERATIONS
Madison, Wisconsin
Amy is a Licensed Master Social Worker with an extensive background in health and well-being program management and clinical social work in the nonprofit and for-profit sectors. Amy received a Bachelor of Arts in Social Welfare from the University of Wisconsin–Madison and a Master of Science in Social Work from Columbia University. She has a passion for supporting and improving the quality of life of patients and their families.
Amy is a Wisconsin native residing in Madison with her two rescue dogs, Chicken & Sugar. Amy reads a new book weekly and enjoys drinking coffee, spending time outdoors, and trying new restaurants in her free time.
Claire Condrey
VOLUNTEER MANAGER
FORT WORTH, TEXAS
Claire Condrey
VOLUNTEER MANAGER
FORT WORTH, TEXAS
Claire has over 15 years of experience supporting volunteers and planning events. She began her career working in ministry and loves using her skills at CCF. Claire greatly enjoys the opportunity to equip and encourage others as they use their special skills and unique experiences to positively influence others’ lives.
A native of Baton Rouge, Louisiana, Claire received her BA in Sociology from Louisiana State University. Shortly after graduating, she moved to Texas for work and loves both states. Claire has an energetic toddler who joyfully consumes her free time. She also has a formerly energetic dog that tries to keep up with the pair.
Sydney Correa
Executive Assistant to the Senior Director of Operations
AUSTIN, TEXAS
Sydney Correa
Executive Assistant to the Senior Director of Operations
AUSTIN, TEXAS
Sydney joined CCF in 2023. She is driven by her passion for streamlining workflows, enhancing efficiency, aiding others, and maintaining a deep commitment to creating a better world.
Outside of work, you’ll find her tending to her herb garden, playing tennis, or enjoying the company of her golden retriever, Chai, in Austin, Texas.
Mary Dalling, CPA
Accounting Manager
HERRIMAN, UTAH
Mary Dalling, CPA
Accounting Manager
HERRIMAN, UTAH
Mary is a Certified Public Accountant licensed in Utah with a Master of Accounting Degree and 25 years of accounting experience, including in the nonprofit sector. She has been with the Foundation since 2010 and has witnessed its tremendous growth over the years. Mary is grateful for the opportunity to use her knowledge and skills to assist with furthering the foundation’s mission.
Mary and her husband, Eric, reside in Herriman, Utah, and have four children and four grandchildren. In her free time, she enjoys running, bread making, serving in her church, and hanging out with family.
Allison Deragon
DIGITAL MEDIA MANAGER
Boise, Idaho
Allison Deragon
DIGITAL MEDIA MANAGER
Boise, Idaho
Allison is a marketing professional with experience in social media management, content marketing, and branding. During Allison’s senior year of college, she connected with the Foundation through a family friend and joined the team of Social Media Volunteers. She continued to be involved by taking a full-time role with the Foundation managing social media and has moved into overseeing all digital media, including advertising strategy.
Allison received a Bachelor of Science in Communications with an emphasis in Digital and Social Media Marketing from Brigham Young University—Idaho. She resides in Cincinnati, Ohio, with her husband, Cody, and their son, Liam. They are expecting a baby girl later this year. In her free time, she enjoys the outdoors and working out.
Mel Fajardo
Cholangiocarcinoma Foundation
Executive Assistant to the CPO
Washington, DC
Mel Fajardo
Cholangiocarcinoma Foundation
Executive Assistant to the CPO
Washington, DC
Mel was a primary caregiver to her mom, Joanna, who was diagnosed with cholangiocarcinoma and passed away in 2023. Walking alongside her mom through treatment gave Mel a deep appreciation for the strength of patients and families, and she is honored to now serve the cholangiocarcinoma community through her work at the Foundation.
She holds a B.A. in Government and Politics with a minor in International Development from the University of Maryland. Mel spent eight years in the federal government, focusing on workforce management and IT product management at the National Cancer Institute and the U.S. Department of the Treasury.
She currently lives in Washington, DC with her husband. She values time with family and friends and is always planning the next gathering or trip. Mel loves cooking, sharing recipes with loved ones, and exploring DC’s diverse restaurant scene.
Laura Herr
Executive Assistant to the Chief Development Officer
Winter Park, Florida
Laura Herr
Executive Assistant to the Chief Development Officer
Winter Park, Florida
Laura is an operations and portfolio management professional with extensive experience in the non-profit, higher education, and art sectors. Having managed major grant portfolios and strategic communications, Laura enjoys turning complex organizational goals into actionable results. From overseeing nationwide outreach efforts to designing efficient operational workflows and programmatic oversight, she brings a meticulous and mission-focused approach to CCF. Laura enjoys fostering meaningful partnerships and streamlining operations to better serve the community.
Laura earned a BA in History and a Certificate in Business Administration from Northeastern University. Outside of the office, you can find Laura spending time with her family (including a busy two-year-old), two Black Labs, traveling, exercising, listening to podcasts, and cheering on the Boston Celtics.
Jennifer Huettl, CRA
Research Grants Manager
Littleton, Colorado
Jennifer Huettl, CRA
Research Grants Manager
Littleton, Colorado
Jennifer is an experienced grant manager with over 10 years of grants experience. She earned her certified research administration (CRA) certification in 2019 and holds her BBA in Finance. Jennifer lives near Denver, CO with her husband and two kids and is often running between kids activities, attending sporting events and enjoying the outdoors.
Kim Kempf MA, LPC
DIRECTOR OF VOLUNTEER ENGAGEMENT
SAINT JOSEPH, MISSOURI
Kim Kempf MA, LPC
DIRECTOR OF VOLUNTEER ENGAGEMENT
SAINT JOSEPH, MISSOURI
Kim has a master’s degree in counseling and guidance from the University of Missouri-Kansas City and is a Licensed Professional Counselor in Missouri. She has nearly three decades of nonprofit program management and leadership experience. As a rare cancer survivor, Kim understands the healing power of community and connection and is dedicated to ensuring that patients and caregivers receive the support they deserve.
Kim resides in St. Joseph, Missouri, with her mom, two dogs, and a cat. Her three children and two grandchildren are her pride and joy. She’s an avid Kansas City Chiefs fan and enjoys watching General Hospital, Food Network, and HGTV. She loves spending time with her friends and dining out.
Myria Kelly
SENIOR COMMUNICATIONS PROJECT MANAGER
CHICAGO, ILLINOIS
Myria Kelly
SENIOR COMMUNICATIONS PROJECT MANAGER
CHICAGO, ILLINOIS
Myria first worked with CCF in 2015 when she was in charge of organizing the travel and lodging arrangements for the annual conference in Salt Lake City. While booking travel for the Foundation, she had the opportunity to speak with scores of doctors, researchers, foundation staff, and patients. She was consistently awed by the reach, support, and advocacy the foundation provides. In 2020, Myria joined the organization as its Program & Operations Coordinator. Now, Myria manages many Communications projects to ensure the smooth delivery of materials for programs and the public.
Myria lives in Joliet with her husband, three children, and two dogs. She is an avid runner and ran the 2021 Chicago Marathon as a member of Team CCF.
Laurie Kikel
SENIOR DATABASE & REVENUE OPERATIONS MANAGER
SARATOGA SPRINGS, UTAH
Laurie Kikel
SENIOR DATABASE & REVENUE OPERATIONS MANAGER
SARATOGA SPRINGS, UTAH
Laurie brings over 22 years of experience in customer service and management to her role as Senior Database & Revenue Operations Manager at CCF. In 2011, Laurie faced the challenges of caregiving firsthand when she lost her father to pancreatic cancer. This experience ignited her passion for supporting the cancer community.
In 2012, Laurie joined CCF as a part-time assistant to the CEO and has since become an integral full-time member of the CCF community, making a difference in every position she manages.
As the Senior Database and Revenue Operations Manager, Laurie oversees data management and accuracy, contributing actively to revenue processes and generation strategies. She is committed to implementing best practices in data integrity and leveraging data-driven insights to optimize operations and inform strategic decision-making.
Outside of work, Laurie is a dedicated wife and mother of four residing in Saratoga Springs, UT. She is passionate about helping others and providing service to those in need. She is a new grandma and enjoys spending time with her family.
Elise Lambert
OPERATIONS COORDINATOR
American Fork, Utah
Elise Lambert
OPERATIONS COORDINATOR
American Fork, Utah
Elise attended Utah State University, earning an Associate of Science, and Weber State University, earning a Bachelor of Science in Marketing from Weber State University. Prior to joining the CCF team, she was an Event Coordinator Assistant at Weber State University.
In 2018 Elise adventured across the country to participate in a Disney Internship, where she worked as a food and beverage Cast Member at Pinocchio Village Haus in Magic Kingdom. She resides in Layton, Utah, with her dog Bella. She enjoys reading, traveling, dinosaurs, and Disney.
Elyce Lindsey
Office Assistant
Lehi, Utah
Elyce Lindsey
Office Assistant
Lehi, Utah
Emma Mach
Senior External Engagement Manager
FORT WAYNE, INDIANA
Emma Mach
Senior External Engagement Manager
FORT WAYNE, INDIANA
Emma is proud to serve as the Senior Patient Outreach Manager, and she’s been part of the team for three rewarding years. Her personal connection to the cause comes from her mother-in-law, 14-year CCA survivor Melinda Bachini. Whether organizing symposiums or representing CCF at conferences, she aims to ensure patients feel supported every step of the way. Outside work, she enjoys newlywed life and loves traveling with her husband to make the most of every moment. She and her husband are expecting twins later this year.
Meredith McGuffage
COMMUNITY FUNDRAISING MANAGER
CHICAGO, ILLINOIS
Meredith McGuffage
COMMUNITY FUNDRAISING MANAGER
CHICAGO, ILLINOIS
Meredith is responsible for recruiting and managing Team CCF participants at events nationwide, including the TCS New York City Marathon and the Bank of America Chicago Marathon. She also encourages the community to share their passion for raising awareness and being active. Before joining CCF, Meredith was the race director for two local 5Ks that raised funds for melanoma and pediatric brain cancer. Running and fitness have always been her passion.
She is married and the mother of two boys. She and her family live in the Beverly neighborhood on the south side of Chicago.
Elizabeth Melachrinoudis, MNPA
External Outreach Coordinator
Washington, DC
Elizabeth Melachrinoudis, MNPA
External Outreach Coordinator
Washington, DC
Elizabeth joined the CCF team in Fall 2024 but has been a volunteer with the foundation since 2022. She holds a BA in Criminology and Sociology from the University of South Florida and an MS in Nonprofit Administration from Louisiana State University. Cholangiocarcinoma holds a special place in Elizabeth’s heart since losing her dad, Kosta, to the disease in 2015. She has spent her career working with cancer patients and researchers in honor of her personal connection.
Elizabeth resides in Denver, Colorado with her three cats Benjamin, Willie, and Ginny. She enjoys traveling, trying new foods, and going to spin class.
Jude Moore
Digital Content Coordinator
Long Beach, California
Jude Moore
Digital Content Coordinator
Long Beach, California
Jude works with the Communications team to create compelling digital content that uplifts, highlights CCF’s mission—and all the amazing people involved in it—and inspires meaningful action. They have years of experience in production, digital strategy, and community-driven marketing and communications. Since 2021, Jude has worked with various non-profit organizations to expand community engagement across multiple social media platforms; before that, Jude taught middle school history and social studies, developed curriculum, and served in school leadership for six years.
Jude resides in Long Beach, CA, with their wife and dog, a border collie named Charli. In his free time, he enjoys going to the beach or getting out into the backcountry to hike, ski, and rock climb.
Amanda Nottke, PhD
Director of Research
Los Angeles, California
Amanda Nottke, PhD
Director of Research
Los Angeles, California
Amanda Nottke, PhD, began her role as Director of Research at the Cholangiocarcinoma Foundation in 2026, after several years of supporting the organization as a Data Scientist. She brings a breadth of experience in cancer research and patient impact, including the co-development of the International Cholangiocarcinoma Patient Registry in her prior role at Citizen Health, and her direct work with patients on clinical trial matching at the nonprofit Cancer Commons. She has also worked extensively as a biopharma strategy consultant, after starting her career in academic research.
Across all these experiences, she has focused on using clinical and molecular data to support research efforts and generate insights that can improve care for patients. She is honored to continue to support the Foundation’s mission and is committed to advancing collaborative research that brings hope to patients and families facing cholangiocarcinoma.
Maggie Ollander
Annual Giving Manager
Denver, Colorado
Maggie Ollander
Annual Giving Manager
Denver, Colorado
Maggie works with CCF’s dedicated community of donors to lead and grow the organization’s annual giving programs, including annual campaigns, monthly giving, and workplace contributions – efforts that are essential to advancing CCF’s mission.
Maggie has built her career in nonprofit fundraising, driven by a passion for creating meaningful donor experiences and maximizing impact. Originally from Northern Virginia, she currently lives in Denver, Colorado, with her fiancé, Steven and their dog, Paddy. Outside of work, she enjoys hiking Colorado’s many trails, paddleboarding in the summer, and getting lost in a good mystery book.
Rick Pollock
DIRECTOR OF CREATIVE SERVICES
STANSBURY PARK, UTAH
Rick Pollock
DIRECTOR OF CREATIVE SERVICES
STANSBURY PARK, UTAH
Rick’s brother-in-law, Mark Clements, was diagnosed in October 2005 with cholangiocarcinoma. Rick has been involved with the Foundation since its inception.
He grew up in Ogden, Utah, and attended the University of Utah, where he earned his Bachelor’s Degree in Mass Communication. While employed as the Marketing/Promotions Director for KENZ-FM, he met his wife, Amy, after she won a radio station trip to Hawaii. Rick worked for the Salt Lake Organizing Committee during the 2002 Winter Olympic and Paralympic Games.
He has been designing print materials professionally since 1992 and digital materials, including websites, since 1998.
Kari Ramage, MA, CGE
Patient Advocate
Waukee, Iowa
Kari Ramage, MA, CGE
Patient Advocate
Waukee, Iowa
Kari joined the CCF team in Fall 2024. She holds a BA in Psychology from Wartburg College and an MA in Thanatology from Hood College. Before joining the Advocacy Team, Kari worked for over 17 years as a family services coordinator in organ and tissue donation, providing trauma, grief, and bereavement services. She has collaborated with hospital and community partners to support patients and donor families and is a leader in grief support and donor/recipient correspondence. Kari has presented at national and regional conferences on family support.
Kari lives in Iowa with her husband, Zach, their two children, Kaily and Barrett, and their pets. She enjoys DIY projects, baking, travel, and hosting gatherings.
Lourdes Rocha-Nussbaum MA, CCLS
DIRECTOR OF PATIENT SERVICES
GOLDEN, COLORADO
Lourdes Rocha-Nussbaum MA, CCLS
DIRECTOR OF PATIENT SERVICES
GOLDEN, COLORADO
Lourdes holds a Master of Arts degree in Developmental Psychology from Teachers College at Columbia University. She has 20+ years of experience working with and advocating for children and families across various capacities.
Lourdes has been connected to the Cholangiocarcinoma Foundation since 2010, after her father was diagnosed with the disease. She began volunteering after his passing in 2012, helping in different areas as needed, and later focusing on the Vietnam Veterans program in 2019.
She has presented patient-focused posters at conferences such as JADPRO, AACR, and AONN, raising awareness and understanding of the supportive programming offered by the Cholangiocarcinoma Foundation. Lourdes serves as a patient advocate for the NCI Hepatobiliary Task Force and has been a reviewer for the Congressionally Directed Medical Research Programs (CDMRP) Rare Cancers Research Program (RCRP) and Peer Reviewed Cancer Research Programs (PRCRP).
Jen Sorensen
DATABASE & REVENUE OPERATIONS MANAGER
HERRIMAN, UTAH
Jen Sorensen
DATABASE & REVENUE OPERATIONS MANAGER
HERRIMAN, UTAH
Jen joined the CCF team in Fall 2021, bringing over 15 years of finance and operations expertise to her role. Known for her commitment to efficiency, attention to detail, and accuracy, Jen plays a crucial role in data management and revenue processes.
Having experienced firsthand the impact of cancer on families, Jen understands the importance of sharing knowledge and educating others to improve outcomes.
Outside of work, Jen is a devoted wife and mother who is actively involved in her church and community. She enjoys spending her free time outdoors, reading, and traveling. Jen and her family reside in Herriman, Utah.
Miranda Steele
Executive Assistant to the CFO
Charlotte, North Carolina
Miranda Steele
Executive Assistant to the CFO
Charlotte, North Carolina
Miranda joined CCF in 2025 with an enthusiasm for nonprofit organizations and volunteer work. With a background in organizational and occupational sociology, she has a passion for how communities and institutions function and how to improve efficiency. Miranda is a strong believer that every individual makes an impact and collaboration is the key to success.
Outside of work, Miranda enjoys acrylic painting, puzzles, and making props. A native to Charlotte, North Carolina, Miranda can be found shopping, touring seasonal attractions, and enjoying the local food scene.
Karen Templeton, MA
SENIOR DIRECTOR OF COMMUNICATIONS
BIRMINGHAM, ALABAMA
Karen Templeton, MA
SENIOR DIRECTOR OF COMMUNICATIONS
BIRMINGHAM, ALABAMA
Karen has over two decades of experience in public relations, media strategy, and risk and crisis communications. She has spent a significant amount of time in her career building and executing communication strategies for higher education institutions. Working with faculty researchers and at a government regulatory agency has provided her with opportunities to translate crucial scientific information for specific stakeholders and the public. As a volunteer, she has spoken to elected officials on Capitol Hill about the importance of funding cancer research. She’s inspired by her dad’s untimely passing from pancreatic cancer and is honored to work at an organization dedicated to improving outcomes for patients and their families.
Karen loves going on adventures with her husband Brian and their children Joseph and Cora. She has a penchant for travel, book clubs, and shelter dogs.
Cindy Thomas
VOLUNTEER COORDINATOR
BOISE, IDAHO
Cindy Thomas
VOLUNTEER COORDINATOR
BOISE, IDAHO
Cindy has been with CCF since 2018. She initially worked to connect dedicated volunteers to the critically important programs at CCF and now works with CholangioConnect mentors, helping them provide mentorship to patients and caregivers. She is inspired by how CCF community members think of helping others in times of great difficulty. She loves working with immensely uplifting and inspirational individuals who give so much despite the challenge of cholangiocarcinoma.
Cindy lives in Boise, Idaho, and is a wife and mother to four girls and grandmother to one with a granddaughter on the way. Cindy received a Bachelor of Science degree from Brigham Young University in Zoology/Pre-Med and enjoys church service, gardening, and a good dance party.
Candace Tise, MPA
Director of Individual Giving
WINCHESTER, VIRGINIA
Candace Tise, MPA
Director of Individual Giving
WINCHESTER, VIRGINIA
Candace works with CCF’s generous and enthusiastic supporters to organize and implement a variety of creative fundraisers that generate financial support crucial to fulfilling CCF’s mission.
Candace has worked for various nonprofits with missions ranging from hunger relief to mental health services, crisis intervention, and equitable education access. She holds a Bachelor of Arts in Communication from Virginia Tech and a Master of Public Administration from Penn State University. Candace resides in the Blue Ridge Mountains of Virginia with her husband, Joe, son, Turner, and beloved cat and dog.
Board of Directors
Teresa M. Delcorso-Ellmann
MONTCLAIR, NEW JERSEY
Teresa M. Delcorso-Ellmann
MONTCLAIR, NEW JERSEY
Teresa’s husband, Stephen Ellmann, was diagnosed with Cholangiocarcinoma in November 2015. The family credits information and resources provided by the foundation with helping to connect Steve with five different liver-directed treatment regimens that were life-extending until his passing in March 2019.
Teresa is a higher education professional and, for the past 30 years, has worked for Rutgers, the State University of New Jersey, in the fields of scholar and research development. She is the Senior Associate Dean and the founding director of the School of Graduate Studies innovative peer mentoring fellowship advising service. She holds a BA in International Affairs and History from the University of Mary Washington and an MA in History from Rutgers. Teresa joined the board of the Cholangiocarcinoma Foundation in 2021.
Dan Blum
HOUSTON, TEXAS
Dan Blum
HOUSTON, TEXAS
Dan is an Investment Manager based in Houston that focuses on developing and managing quantitative, systematic strategies on behalf of clients. He is a Managing Member and Founder of Glenhaven Capital LLC, a Commodity Trading Advisor, as well as the Managing Member and Founder of Evan Capital LLC, which is a Registered Investment Advisor in the State of Texas. He holds a BA from Vanderbilt University and an MBA in Finance from the NYU Stern School of Business.
Dan’s mother, Linda, passed away from cholangiocarcinoma in 2007 following a 10-month battle. Dan, along with his father, Mel, and sister, Amy, have been involved in the advocacy for cholangiocarcinoma research since 2007 in various capacities. Dan became involved with the Foundation after attending his first annual meeting in 2016. Dan is also highly involved at MD Anderson as a member of the Advance Team, which is a group of young professionals that serve as ambassadors for the institution.
Tyler Bridegan
HOUSTON, TEXAS
Tyler Bridegan
HOUSTON, TEXAS
Tyler resides in Houston, Texas, and is a partner in the Houston office of the international law firm Womble Bond Dickinson, where he assists clients with the full lifecycle of risks related to technology, privacy, and cybersecurity issues. Prior to his current role, he held senior roles at both the Texas Attorney General’s Office and the Federal Communications Commission. Tyler is originally from Broken Arrow, Oklahoma, and is an alumnus of the University of Oklahoma and the Georgetown University Law Center.
Jack Callaway
LONDON, ENGLAND, UK
Jack Callaway
LONDON, ENGLAND, UK
Jack Callaway is a financial services executive with 30+ years of Wall Street, mergers and acquisitions (“M&A”) and financing experience. Jack began his investment banking career in New York City in 1989 at Rothschild, a leading global financial advisory M&A boutique. He later moved to Lehman Brothers in 2000 where he became its Global Co-Head of Telecom M&A. After joining Barclays in 2008, Jack moved with his wife, Julienne, and three children, James, Emeline and Maddy, to London, England and was promoted to Global Co-Head of Barclays Telecom, Media and Technology Investment Banking Business. He later became its Chairman.
Jack graduated with a Masters in History from Oxford University and B.A. from Yale University. Jack became involved with the Cholangiocarcinoma Foundation when his wife, Julienne, was diagnosed with cholangiocarcinoma in 2018. She passed away after a brave 16-month battle. She was only 53. Julienne’s strength and courage inspired Jack to join the Board of the Cholangiocarcinoma Foundation at the end of 2021.
Sam Chi
Menlo Park, California
Sam Chi
Menlo Park, California
Sam Chi is a commercial leader in biotechnology with over 20 years of experience working across oncology, immunology, dermatology, and rare diseases. He has focused his career on advancing new medicines and building partnerships that bring innovative therapies to patients with serious unmet needs. Over the course of his career, he has held leadership roles at companies including Genentech, Eli Lilly, Pfizer and Johnson & Johnson. He brings to the Foundation a unique perspective from the biotech industry and drug development, helping to bridge patient needs with innovative science and meaningful partnerships. His commitment to the Foundation’s mission is deeply personal—his mother passed away from cholangiocarcinoma in 2007. Sam is honored to serve on the Board and help accelerate progress for patients and families impacted by this disease.
Ross Green
NEW YORK, NEW YORK
Ross Green
NEW YORK, NEW YORK
Ross Green is a Portfolio Manager on the Investment Team at Elliott Management Corp. Mr. Green focuses on the funds’ energy related special situation investment strategies. Mr. Green has 15 years of investment experience and has helped facilitate numerous situational and private equity investments in the energy sector. Prior to joining Elliott, Mr. Green was an Energy Analyst at Och-Ziff. Mr. Green graduated from Washington University in St Louis with a Bachelor of Science in Mechanical Engineering.
Ross began working with the Cholangiocarcinoma Foundation in 2014 after his father, Bart Green, was diagnosed with cholangiocarcinoma. Ross joined the board of the Cholangiocarcinoma Foundation in 2017.
Lytch Gutmann
Houston, Texas
Lytch Gutmann
Houston, Texas
Lytch Gutmann is a partner in the Houston office of Bracewell LLP. She has more than 15 years of experience advising clients on mergers and acquisitions, joint ventures, and other complex transactions, primarily in the midstream energy sector. She holds a B.A. from Hollins University and a J.D., cum laude, from South Texas College of Law Houston.
Lytch’s connection to the Cholangiocarcinoma Foundation began when her mother, J-Bird Cook, was diagnosed with cholangiocarcinoma. The Foundation was an invaluable resource to her family, especially through the support of J-Bird’s CholangioConnect patient mentor. After her mother’s passing in 2023, Lytch became actively involved with the Foundation, serving as a caregiver mentor through CholangioConnect and later joining the Houston CARE Team as one of its initial members. Lytch joined the Foundation’s Board in 2025.
Kris High
DENVER, COLORADO
Kris High
DENVER, COLORADO
Kris became involved with the Cholangiocarcinoma Foundation (CCF) following her husband Jeff’s diagnosis in September 2022. In the early days, the Foundation was instrumental in helping their family navigate the complexities of the disease, providing critical guidance and support. As Jeff continues treatment, CCF remains an invaluable resource. Now, in the spirit of giving back, Kris and her family feel honored to support others facing cholangiocarcinoma. Through the Bachrach Family Foundation, they helped fund a research initiative focused on immunotherapy resistance as part of a collaborative effort to improve treatment strategies. Kris also actively participates in CCF’s caregiver calls, webinars, and other opportunities to engage with experts, patients, and caregivers.
Based in Denver, Kris balances life as a mom of two teenagers with her work partnering with startup CEOs and leadership teams. She helps organizations clarify mission, vision, values, and business identity, then turn that clarity into operational maturity, decision discipline, and the capacity to navigate change. Whether the goal is long-term sustainability or a successful exit, her focus is the same: reduce noise, build trust, and create systems that work.
Jerry Huang, MD, PhD, MBA
Philadelphia, Pennsylvania / Hong Kong
Jerry Huang, MD, PhD, MBA
Philadelphia, Pennsylvania / Hong Kong
Jerry has 20+years of oncology global clinical development experience with expanding leadership responsibilities; strategy development from First-in-Human to Proof-of-Concept to pivotal registration studies; hands-on global clinical studies from IND (phase 1) to NDA enabling(phase 2/3);worked on multiple solid tumor indications and orphan indications; Health authority interactions (FDA CDER, CDRH, EMA); working experience in the Asia Pacific and China; hands-on global clinical operation with CROs; collaborated with multiple line functions on medical monitoring, ongoing and final analysis of clinical data/summary
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie Lindsey
Cholangiocarcinoma Foundation
FOUNDER & CEO
LEHI, UTAH
Stacie’s brother, Mark Clements, was diagnosed in 2005 and ultimately passed away from Cholangiocarcinoma on January 19, 2007. Stacie advocated for her brother, extensively researched treatment options, and began networking with other patients, scientists, and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born.
Stacie is a founding member and has served on the Board of Directors since its inception. Stacie resides in Lehi, Utah, where she has five children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University and studied nonprofit leadership at Harvard Business School. Stacie is an active member of her church and community.
Alex Strati
Elkhart, Indiana
Alex Strati
Elkhart, Indiana
As Director of Professional Advisors, Alex supports financial and legal professionals who assist individuals with estate planning, helping to facilitate charitable giving through the Community Foundation of Elkhart County. Alex retired from Old National Bank after a 34-year career. His community involvement included a multitude of volunteer leadership positions with The Boy’s & Girl’s Club of Elkhart County, The United Way of Elkhart & Washtenaw County, Beacon Health System, CAPS (Child & Parent Services), The Elkhart Chamber of Commerce, St Vincents DePaul School & Parish and Oslo Little League.
Alex earned his bachelor’s degree from Manchester University in 1987. He achieved his RMA CRC credit designation; the Omega Commercial Lending designation & graduated from the IBA School of Banking. Alex & Michelle have 3 grown children, all married and are blessed with 6 grandchildren.
Alex’s wife Michelle (Chelle), passed away in November of 2022 after a 12-month courageous battle with cancer. They were high school sweethearts that were happily married for 34 years.
Liz Warner
NEW YORK, NEW YORK
Liz Warner
NEW YORK, NEW YORK
Ms. Warner is a Principal in the Ares Credit Group, where she focuses on opportunistic credit investing. Prior to joining Ares in 2024, she was a Principal at General Atlantic Credit (formerly Iron Park Capital), where she focused on private opportunistic credit for both performing and stressed companies. Previously, Ms. Warner was a Principal at KKR, where she focused on private credit. In addition, Ms. Warner was an Analyst in the Leveraged Finance Group at Nomura Securities. Ms. Warner holds a B.A., magna cum laude, from the University of Pennsylvania in History and Economics.
Liz’s father was diagnosed with cholangiocarcinoma in 2018 and passed away shortly after at the age of 62 and she joined the Board of the Cholangiocarcinoma Foundation in 2021.
Emeritus Members
Demetrios Anaipakos, 2006-2010
Lillie Chen, 2014-2016
C. Ray Clements, 2006-2010
Bruce Coppock, 2016-2022
Joni Craighead, 2006-2008
Barbara Dupont, 2017-2021
Lawrence Goodfield, 2012-2017
Sara Hinkley, 2006-2012, 2017-2021
Mark James, 2006-2008
Dawn Duchene Lyon, 2010-2017
Colleen Mather, 2024
Patricia Maxin, 2017-2024
Dean Meyer, 2021-2025
Robert Russell, 2020-2023
Dr. Rudolph Pena, 2006-2009
Rick Pollock, 2007-2012
Marion Schwartz, 2009-2016
Jason Scott, PhD, 2014-2026
Sean Turbeville, PhD, 2013-2017