My name is Laurie
From Napa, CA.

My mother, Kate (79) was diagnosed  with cc in June.  Had 65% liver resection and has done remarkably well.  Hers was a T3N0. 

She starts chemo on Tuesday. 

Just trying to stay positive!

I am so grateful for this site!

Lu,  I support you 100% and wish you the best outcome possible.  I have tried everything possible chemo, radiation, resection years ago.  My most positive and slowest progression was right after my resection about ten years ago.  That last three and 1/2 years my body has taken a beaten with all the advanced modern wesrtern approach.  Pros and cons both ways I guess.  Trying Tarceva at the moment.  One supplemnet I tried was Sun Farm Vegtable soup.  You can look up on internet under sun farm if your interested. I found the freeze dried packets mixed with no-sugar applesauce easy to deal with than the tubbed soup that has to be kept frozen once recoived.  Again wish you guys the best!
God Bless,
Jeff

Hello, I am Iris and live in the Netherlands.

I am caregiver for my wonderful husband Peter, who was diagnosed in May 2007 with cc. Surgery was not possible and he has been fighting this beast for 1,5 year now, against a life prediction of 2-3 months.
Now however, he seems to be loosing this battle. At the moment he is in hospital and the doctor mentioned the word terminal.
To-day he will have a liver-echo, which will tell us more.

My thoughts are with all you patients and caregivers. Life is not easy at the moment, but still contains a lot of happy moments too.

Iris.

Hi, caregiver in NC

My father was diagnosed 10/28/08 with CC, intrahepatic bile duct cancer. He is 86 yo and a 13 year survivor of colon cancer. The CC is the only cancer he has now and everyone was surprised to find this is not a return of his colon cancer. His tumor is 4 ins (11cm, IIRC) and involves 3 ducts.

His doctor has recommended chemoembolization therapy. We go to the vascular doctor to discuss treatment protocol, expectations, and scheduling on the 17th.

Hi Iam DR MPReddy from india.diagnosed in 08/07 had Rt lobectomy and cholecystectomy  with roun-n-y hepatojejenostomy  in 3/8 with cancer free resection.back to full work in 4/8 doing pretty good.having regular usscan.ctscans,lft/afp studies every one month. sofar so good.though i had bile leak for 1 month i kept working stubernly. bile leak stopped in 2months time.liver compleately regernarated in 2months time.Incidentally iam a practicing Gastroenterologist  busy doing as many as 40 procedures a day and diagnosing about 3to 4 cancers every day. my life and attitute has tolally changed with cancer patients . now iam undestanging there physical and emotional pain as well as  i know how the pt feels. Its difficulty to pratice like that when i my self having cc and giving emotion support to every one. till this day only myself and my wife knows this secret as i dont want any body to sympathise with me. Iam a trekeer  in pastbefore the cc story  i have trekked  many mountains like  kilmijaro in africa and alps in swiss. mt fuji in tokyo and may areas in in himalyan range upto 21000feet height. Recently in nov08 i have trekked Nathull passin himalyas near india china border  of 15000 feet  to proove myself . I  want to live and conquer the disease  and serve the  people  and share there emotions. iam confident and courageous and will live with hope and prayers.

Welcome, Doctor, to the best little club in the world that no one wishes to join.
With CC you have now put on your most powerful boots to climb your tallest mountain! It is one rough trek, however we never loose hope of getting to the top to find a new treatment or a cure. Heck, at this point we would be happy with even a little recognition. There is not much research as you know, and many doctors just throw up their hands in defeat when they tell you that you have CC. You keep trekking and please keep us posted on your journey!