A Survivor’s Mission to Light the Way for Patients with Cholangiocarcinoma
Article provided by Daily Point of Light.

In November 2021, Kathy Virgallito received a life-altering diagnosis: cholangiocarcinoma (CCA), a rare and aggressive bile duct cancer. While undergoing treatment in 2022, Kathy faced the harsh realities of this disease. But instead of retreating, she found purpose in paving the way for others navigating similar challenges. With determination to light the way for others, Kathy began volunteering with the Cholangiocarcinoma Foundation. She aims to be a voice of understanding, encouragement and empathy to others going through this difficult diagnosis.

As a patient mentor, Kathy provides personalized support to patients across the United States. Through phone calls, texts, and emails, she offers a listening ear and practical guidance. Her efforts help patients feel less isolated, more hopeful, and better equipped to advocate for themselves. One mentee remarked on how Kathy’s mentorship inspired her to embrace self-affirming activities and take charge of her medical journey.
Kathy’s impact extends beyond one-on-one support. As the team leader for the Greater Seattle CARE Team, she spearheads local efforts to build a supportive community for CCA patients and caregivers. In September 2024, Kathy helped organize the first-ever Greater Seattle Patient and Caregiver Gathering, which drew 27 attendees, including patients, caregivers, medical professionals and researchers. The event elevated the need for and importance of local connections and up-to-date information on treatments and research, also leaving participants eager for more gatherings. Kathy is now planning the next event for February 2025 and working to distribute educational materials to healthcare providers and at health fairs.
Kathy’s advocacy also reaches national levels. As a member of the Cholangiocarcinoma Foundation’s Key Communicators group, she is dedicated to influencing policymakers to secure additional funding for CCA research. Kathy is preparing to meet with legislators and share her personal story to advocate for advancements in treatment and care. Read on to learn more about Kathy’s dedication to making a difference, ensuring that no one facing cholangiocarcinoma feels alone in their journey.
Read a fantastic Q&A with Kathy on the Daily Point of Light site here.