Data Project Proposal

The Cholangiocarcinoma Foundation (CCF) invites researchers from around the world to submit their project proposals and gain access to our robust and growing real-world data resources. These datasets are designed to accelerate discovery, fuel innovation, and support meaningful advancements in the understanding, diagnosis, and treatment of cholangiocarcinoma:

• The Registry / Medical Records-Based Dataset (Citizen) includes about 600 individuals who have provided their medical records for conversion into structured and de-identified data with rich detail including clinical characteristics, biomarkers, treatments, and outcomes.

• The Claims Dataset (Komodo) includes most insurance types (approximately 140,000 individuals) and offers detailed information on demographics, diagnoses, interventions, outcomes, and supports HEOR analyses. 

For further details on the datasets, proposal process, and example projects, please click here.

Our experienced data team is ready to partner with you at every step, offering expert guidance, technical support, and collaboration opportunities to help you make the most of these valuable resources. Whether your work is in basic science, translational research, clinical studies, or data modeling, we are committed to empowering your efforts and driving progress in the fight against this rare cancer.

Submit your project today and take the next step toward transforming your ideas into impactful outcomes that can benefit patients worldwide. Please contact us at research@curecca.org with any questions