CCF ADVOCACY
Connect with a Patient Advocate
Our Patient Advocacy Team provides personalized support, trusted resources, and connections to a community that understands the challenges of this disease.
Connect with a Patient Advocate today using the “connect” button below. This is a free service
Meet Your Patient Advocates
Kari Ramage, MA, CGE
- More than 17 years of supporting patients and families through complex medical journeys
- Expertise in trauma, grief, caregiver support, and family-centered care
- National presenter on family support and patient advocacy
Lourdes Rocha-Nussbaum, MA, CCLS
- Connected to the cholangiocarcinoma community since 2010
- Expertise in patient and family advocacy, caregiver support, and community engagement
- Bilingual patient advocate; speaks Spanish
Melinda Bachini
- 16-year+ cholangiocarcinoma survivor and patient advocate
- Expertise in treatment navigation and patient education
- Serves on committees to improve clinical trial design
- Global advocate advancing awareness, resources, and patient-centered care