Federal Research Funding Is on the Line — Make Your Voice Heard

The U.S. House of Representatives is beginning work to fund the federal government, and this is a critical moment to speak out for those affected by cholangiocarcinoma and other rare cancers.

We must remind our representatives that federal research funding isn’t just a line item — it’s a lifeline.

Right now, key congressional committees are drafting spending bills that determine how much funding agencies like the NIH and NCI will receive. Proposed cuts would threaten progress, delay hope, and slow the momentum we’ve built together.

Cholangiocarcinoma patients can’t wait. We urge Congress to build on the strong, bipartisan support that medical research has long received — and ensure continued, increased investments in rare cancer research.

🗣 Take action today. Tell your representative what research means to you and why sustained funding is essential for discovering earlier diagnostics, better treatments, and ultimately a cure.

Together, we can protect progress — and push for more.

Find your Representative here and feel free to use the scripts below. Thank you for building strength in community and hope in research.

📞 Phone Script

Hello, my name is [Your Name], and I’m a [patient/caregiver/family member/supporter] from [City, State].

I’m calling to ask Representative [Last Name] to protect and increase federal funding for rare cancer research — especially for cholangiocarcinoma, a devastating and underfunded bile duct cancer.

Continued investment through agencies like the NIH and NCI is critical to discovering earlier detection methods, better treatments, and ultimately, a cure.

Please ensure research funding remains a priority in this year’s budget. Lives depend on it. Thank you.

📧 Email Script

Subject Line: Please Protect and Increase Rare Cancer Research Funding

Dear Representative [Last Name],

My name is [Your Name], and I live in [City, State]. I’m writing to ask you to protect and increase federal funding for rare cancer research, including cholangiocarcinoma, an aggressive bile duct cancer that is often diagnosed too late and lacks effective treatment options.

As Congress works on this year’s budget, I urge you to support strong investments in medical research through agencies like the NIH and NCI. These dollars offer hope to families like mine and to the thousands impacted each year by rare cancers.

Thank you for your leadership and continued support of lifesaving research.

Sincerely,
[Your Full Name]
[Optional: Your Address]
[Your Connection to Cholangiocarcinoma]