COLLABORATION
Research Collaboration
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The Cholangiocarcinoma Foundation (CCF) is committed to advancing innovative, patient-centered research that leads to meaningful improvements in the lives of individuals affected by cholangiocarcinoma. While we proudly provide letters of support for research funding applications, our involvement can extend well beyond that. We are eager to serve as an active collaborator on research projects and grants, offering a range of strategic services and insights to elevate the scientific impact and patient relevance of your work.
CCF is eligible to serve as a contractor for specific services or as a sub-recipient on federal research awards, including NIH R01 grants, and has the infrastructure, compliance capability, and programmatic expertise to engage meaningfully in federally funded research.
Some Ways CCF Can Collaborate on Your Research Project:
Study Design & Endpoint Feedback
CCF experts provide input during protocol and grant development. Early involvement ensures studies reflect real-world patient needs. Including the patient voice will help define relevant endpoints and clear language, supporting patient-centered trials.
Protocol Review & Refinement
We review protocols and provide feedback that complements clinical perspectives. Our input ensures language, activities, and expectations are clear, feasible, and aligned with patient experience.
Trial Oversight Participation
CCF representatives can join advisory boards or Steering Committees, ensuring the patient voice remains present as trials evolve through amendments or interim results.
Dissemination of Results
CCF reviews presentations to ensure findings are accurate and accessible. With broad reach, we help maximize visibility and impact across audiences.
Social Media & Digital Engagement
CCF’s multi-platform presence offers access to an engaged audience. We share updates, recruitment, and results in ways that resonate with patients, caregivers, researchers, and donors.
Storytelling From Bench to Bedside
We translate complex science into compelling narratives that highlight how discoveries impact patient lives. These stories appear across web, social, video, and email platforms, often picked up by media and newsletters.
Media Training & Message Development
CCF provides media prep for researchers and clinicians to confidently share findings. We help refine messaging for clarity, accessibility, and resonance with diverse stakeholders.
Press Release Development & Outreach
We collaborate with institutional communications offices to draft, coordinate, and distribute press releases. Our targeted outreach amplifies coverage across medical, scientific, and mainstream outlets.
Patient-Friendly Dissemination of Results
CCF shares research findings in accessible formats like infographics, videos, blogs, or webinars. This builds trust and reinforces transparency with trial participants and families.
Research Advocate Meeting
Gain patient perspective through a Patient Advisory Board, where PIs share research with advocates.
The Value of Partnering with CCF
Engaging the Cholangiocarcinoma Foundation as a collaborator provides a critical bridge between the scientific community and patients. Our involvement can enhance your research’s rigor, relevance, and reach. Together, we can ensure that every study advances science and does so with and for those most affected by cholangiocarcinoma.
For collaboration inquiries, please get in touch with us at: research@curecca.org