Category: Blog Post

CHOLANGIOCARCINOMA SURVIVOR STORY: A Mother-Daughter Journey of Hope, Faith, and Triumph Part V

SECTION 7: SEPTEMBER 16, 2025 - TRANSPLANT DAY FOR MOM:What do you remember about the day of transplant?I remember everyone…

Pam and Kim - Volunteering as a Family Affair

Sisters Pam and Kim have excellent reasons for wanting to be involved, and their experience with cholangiocarcinoma (bile duct cancer)…

CHOLANGIOCARCINOMA SURVIVOR STORY: A Mother-Daughter Journey of Hope, Faith, and Triumph Part ||||

SECTION 4: THE PATH TO TRANSPLANT FOR MOM:When did you find out you were a transplant candidate?After the final PET…

You Are a Person, Not Just a Diagnosis: Antonio’s Story

Diagnosed with cholangiocarcinoma in December 2024, Antonio from Italy shares how surgery, chemotherapy, the support of loved ones, and the…

Learning About Treatment Options

Navigating a cholangiocarcinoma diagnosis can bring many questions about treatment, support, and what comes next. The Cholangiocarcinoma Foundation (CCF) developed…

It's Not You, It's Me: A Second Opinion Story

By Ingrid Laub I knew I had to tell him I wanted to see other people but I could never…

FDA Approval of Lirafugratinib

We are pleased to share this announcement with our community from the Acting Director of the FDA Oncology Center of…

Video: Biomarker Testing Explained

Click on video to play and expand.CCF's Director of Research, Amanda Nottke, PhD, explains what biomarker test results can mean…

Community Champion: Climbing with Keaton Herzer

Words that come to mind when describing Keaton Herzer: resilience, determination, and courage. But even these descriptions don’t begin to…

Kayla’s Story: Hope & Joy Through a Second Cancer Journey

by Nicole Borey, Kayla's Mom Kayla is 21 years old, and unfortunately, cancer has been part of her story for…

FDA Approves OncoSil™ Device for Distal Cholangiocarcinoma

A new treatment option is now available for some patients with distal cholangiocarcinoma (dCCA) in the United States. On August…

In-Person CARE Event: Washington, DC/Baltimore

Whether you are a patient, caregiver, loved one, or healthcare professional, you are part of the cholangiocarcinoma community and welcome…

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